NHS drug pricing & access - share your story!

The pharmaceutical industry is pushing to water down a critical agreement that stops the NHS’s medicines bill from spiralling out of control. If big pharma gets its way, the NHS will be paying an extra £2.5 billion per year for medicines.

We're concerned about what this change might mean for patients' access to medicines, and we are fighting to ensure that patients' voices and stories cannot be ignored!

So if you have a relevant experience to share, we want to hear from you. Here's what we're looking for:

1. Have you experienced difficulties accessing a drug you needed? Maybe you had to fulfil particular conditions to get access or were forced to wait. The pharmaceutical industry uses lots of different tactics to keep prices exorbitantly high so whatever your story is please do share.

2. Have you ever been on any of the ten drugs (listed below) that are currently the most expensive to the NHS? We're worried about how much important drugs like these are going to cost the NHS, and so we want to hear from patients who have benefitted from them. If this applies to you, please let us know which drug(s) you have experience of, how long you were on it for, what impacts it had for you, and whether or not it was straightforward getting access.

*The ten drugs that cost the NHS most money:*

  • Adalimumab (an anti-inflammatory used for a number of conditions including arthritis)
  • Aflibercept (used for colorectal cancer)
  • Etanercept (used for arthritis)
  • Infliximab (used for arthritis)
  • Ranibizumab (used for age-related macular degeneration)
  • Pembrolizumab (used for cancer)
  • Apixaban (used for blood clots)
  • Lenalidomide (used for cancer)
  • Trastuzumab (used for cancer)
  • Rivaroxaban (used for blood clots)
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