This action submits written testimony to the Medical Services Board and shares written concerns with the Joint Budget Committee.

Why is this important?

Proposed Medicaid rule changes would cut hours for parent paid caregivers, even in rural communities where no other service providers exist.

In many rural areas, families face severe shortages of providers. There are no agencies or staff available to deliver direct care or respite. Parent-paid caregivers are often the only workforce keeping children with complex disabilities safely at home. Cutting these hours removes care—it does not replace it.

These proposed changes will be reviewed and voted on by the Medical Services Board, and the associated cost “savings” are overseen by the Joint Budget Committee, which is responsible for the state’s budget. Both bodies need to hear directly from families about the real-world impact in rural communities.

Written public testimony and emails to budget leaders are critical to ensure decision-makers understand that these changes shift costs, increase risk, and remove essential care from families who have no alternatives.

Your voice matters. Take action today.