Every letter counts. By contacting your U.S. Senators and Representatives, you’re putting a human face on Hunter syndrome and showing the urgent need for faster access to life-changing treatments like RGX-121 and DNL-310. Delays mean lost abilities, independence, and precious time for our children. Your voice can help lawmakers prioritize rare disease families, push for meaningful action, and make sure no child with Hunter syndrome is left behind. FDA Delays = Lost Lives