Listening for the Long Haul launch event

Start: 2026-05-06 16:30:00 UTC Eastern Daylight Time (US & Canada) (GMT-04:00)

End: 2026-05-06 18:00:00 UTC Eastern Daylight Time (US & Canada) (GMT-04:00)

Event Type: Virtual
A virtual link will be communicated before the event.

Host contact info hello@longcovidjustice.org

Graphic image with a soft green, blue, and purple gradient background. Text colored in a blue, purple and black gradient says: "Listening for the Long Haul, May 6 2026." There are illustrations of a bird flying, a window, an N95 mask, a microphone with a cord, and a long-haired person resting on a pillow while listening to headphones.

Join us to celebrate the launch of our new Long COVID oral history website! You’ll hear from project organizers and participants about their experience in creating a community-centered, people’s history of Long COVID. We’ll share the story behind the project, highlights from the interviews, and more.

Listening for the Long Haul (LFLH) is an oral history project grounded in disability justice that features 20+ interviews with people living with Long COVID and associated conditions (LCAC). Rather than try to create a singular, mainstreamed account of Long COVID, we collected a variety of stories from a small group of people most impacted by LCAC and its social and economic ripple effects. This includes many voices from marginalized communities and intersectional identities, including a variety of identities across race, gender, disability, class, immigrant status, location, and more.

We’re building a living history of Long COVID, and pushing back against COVID denialism and ableism. Our stories are powerful, and our hope is that we can use them to shift the narrative of Long COVID – including educating healthcare providers and creating concrete changes in the care and support that we need and deserve.

SPEAKERS

  • LFLH participants:
    • Chimére L. Sweeney, Founder of The Black Long COVID Experience & The Blackest Side of Long COVID
    • Jacquie Luciano, Patient advocate and Long COVID Advisor for National Organization for Nurses with Disabilities
    • Tracey Thompson, Founder of BIRCH (Black Indigenous Racialized Covid Health)
    • Una Osato, Patient advocate and community artist
  • LFLH organizers:
    • Jennie Brier, UIC professor & LFLH project lead
    • Kaimara Herron, UIC PhD student & LFLH project manager
    • Gabriel San Emeterio, Long COVID Justice senior fellow

Get full speaker bios and more event info on our Events page!


ACCESS INFO

  • Panel followed by Q&A
  • Presentations will be in spoken English with ASL interpretation
  • Audio description of visual materials will be included
  • Access doula for support during the event
  • Participation in chat or Q&A is optional
  • Recording & resources will be sent to all who register.


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HOSTS & SUPPORTERS

L4LH is a collaboration between Long COVID Justice and History Moves, a public history project based at the University of Illinois Chicago (UIC). We're grateful for generous support from the Andrew A. Mellon Foundation’s Humanities without Walls Consortium and UIC Institute for Policy and Civic Engagement.


QUESTIONS?

Contact hello@longcovidjustice.org


If you want to support this and other work we do, please consider making a tax-deductible donation!